Caring for someone with Alzheimer’s disease can be both rewarding and challenging at the same time. For both caregivers and those living with the disease, every stage brings new experiences, emotions, and challenges. Whether you’re a family or professional caregiver, it is important to understand the realities of Alzheimer’s, and the ways you can provide support and compassionate care while caring for yourself.
- Provide a Routine and Schedule
People with Alzheimer’s can become easily confused which can lead to frustration and agitation. Even small disruptions in their routine can feel overwhelming to them because they may not understand what is happening. A consistent daily schedule for meals, medications and activities can help reduce their anxiety and agitation.
- Speak in a Language Their Mind Will Understand
Conversations and tasks are going to take longer than average when a person has Alzheimer’s. They might not understand what you are asking them to do, or it may take their brain extra time to process it. It’s important to slow down and speak slowly. If they don’t understand what you are asking, show them. Use non-verbal cues such as hand gestures. Mime activities such as brushing your teeth. Show the person physical items when they don’t understand what you are saying. For example, you might ask them if they would like a glass of water, but instead of answering you they just look at you. Instead of repeating yourself, show them the glass of water. It’s important to take the time to learn how their brain is processing things and then “speak” to them in a language they will understand.
- Be Patient
As language skills and memory declines repetition becomes more prevalent and you may be asked the same question over and over or be entertained by the same stories. It’s important to remember that people with Alzheimer’s are not trying to be difficult. Repetition is the result of their brain no longer being able to retain the memory of what they just said or the response they received. By remaining patient, and demonstrating interest in what they are saying, you are showing them respect and preserving their dignity.
- Emotions Outlast Memory
Even if someone forgets what was said or done, they will remember how it made them feel. Always speak in a kind tone of voice, laugh when they laugh, and smile at them to let them know you are happy to be with them. As I tell family members, your loved one may not be able to say “Jack came and had lunch with me today,” but if you spend time with your loved one and make them feel loved and connected to you, that feeling will stay with them long after your visit is over.
- Focus on the Person’s Reality
A favorite activity one day may cause agitation the next day. It’s important to stay flexible and be in their reality. Do not try to convince the person that they liked the activity yesterday. Refocus on things that are meaningful and familiar. By continually adjusting your expectations and meeting the person where they are at any given moment will make your time caregiving less stressful and more rewarding.
- Show That You Value Them
Completing a task, sharing a story, or enjoying some quiet time together can provide comfort and satisfaction to a person with Alzheimer’s. Don’ t be afraid to ask them to help you with small household tasks. It’s important that they know that you see them and value you them.
- Family Caregiver Stress is Real
Supporting someone with Alzheimer’s can be emotionally and physically demanding. It’s important to remember to take care of yourself, without feeling guilty. Accept help from family and friends, and in-home care service providers.
Remember, caring for a person with Alzheimer’s and dementia requires, patience, flexibility, and a deep well of compassion By taking the time to understand the causes behind the behaviors, and using targeted strategies to manage the behaviors, caregivers can reduced stress for both themselves and the person needing care. It’s also important to remember that every thing you do to support someone with Alzheimer’s, no matter how small, makes a meaningful difference in their lives.
